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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hi all
got a call from the hospital. the consultant rheumatologist is seeing me on next thurs, 8.30am before clinic starts.
not really sure what to say to him because i am feeling upset about things but need some clarification on where things stand, where they are now and where we are going.
any tips of what to say/ ask about please- obviously a planned admission date.
Jenni xhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Thank God! I have to say it's about time too. I'll have a think and if I come up with anything, will let you know.
MUCH love
Jeanxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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 Thats good news jenni A list of most important things need to let rheumy know about,any new symptoms, sure we all think something to help you hun. warm hugs. t care melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Thank goodness someone is listening at last Jenni. Can't advise what to ask but do think you should pack 'red boots' just in case. How is everyone after the tummy bug? Hope things are settling down for everyone.
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Don't know about the others, Julie, but I'm sort of emerging from it now! Thanks for asking.
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Not before time Jenni!
Jean, I am so relieved to hear that you are getting a bit better. Rest easy my friend.
Eleanor x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 585
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Hi Jenni
I am so pleased you are being listend to
please take great care
all the best
Mary L
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
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Jenni
So glad you are being listened to, hope it results in something useful - quickly!
Anthea x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi jenni, so glad that you have been listened to, its good that they are seeing you before the clinic starts, you wont have to wait around. Good luck x BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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I'm so glad you've got an appointment at last Jenni.
Make sure they have written in your notes everything that happened when you had the Toc... drug (can't remember the name.
Also, try to get them to liaise with the endocrinologist.
Good luck with it.
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 64 Location: Sussex
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Dear Jenni,
So glad youve got an appointment, Im not sure what Id say in your position except that Id be wanting a care plan for the coming six months at least... with, what if this happens actions.
I would also want closer follow up appoinments, weeks rather than months..there is nothing worse than developing a new health problem and not being seen until its either too late or its cleared up.
Good luck with your appointment,
Ellie x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Good news Jenni. Can't think of anything to ask, but Ellie's ideas seem good.
Hapy new year- let's hope it brings you some answers and the support you deserve.
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Jenni
I think Ellie has made some very good points in her post.
MUCH love
Jeanxxxx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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right
* Care plan
* regular appointments
* multi-disciplinary meeting
* planned admission
the other thing I am going to ask for I think is a full assessment of the state of play as things are now - prob as part of admission.
Also to see about the surgical options.
i did smile a bit, when in hosp, there was an elderly gent who was admitted following an infection for "intensive physio for poor mobility".
WHY do we never get NEAR this as RA Patients?
WHY in all these yrs has NO professional ever asked how I manage at home before discharge. I know there are problems with elderly care but tbh, I think that it is the under 80s who get shoddy treatment. I know all about the bed blocking problems with elderly patients- but at least they are on a bed in the first place to block it!
Little rant there!
Love
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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So glad you are feeling up to having a bit of a rant Jenni! Take care.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Good to hear you've got your RED BOOTS back on Jenni - now show them what you're made of  Love, Barbara XXXXX
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Blimey Jenni, you have every right to that rant, you are saying it for all of us you are so right. I'm so pleased that you are getting some of the attention that you need and deserve, Good luck and take care. Glenys x
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Dear Jenni
I'm glad you've got your appt quickly, I hope your questions are answered and they come up with a good plan for you.
Will be thinking of you.
Love Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Your points are good ones. You will need a low threshold for hospital admissions and by-monthly appointments.
Love,
A
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 216
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Wishing you all the luck in the world, Jenni.............not least with getting out of bed to get to that appointment on time!! Will try to think of you ............  from under my warm, snuggly, toasty duvet .............at 8.30am on Thursday!!!!MUCH love, Lxx (posting early in case I get too involved with the next lot of chemo!!!) Always be aware that what you do might hurt others........and if it could, do nothing without careful consideration of the consequences
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